Back to Feed
总结
前Little Mix成员、英国歌手杰西·尼尔森本周公开其双胞胎女儿被诊断为脊髓性肌萎缩症（SMA），并分享孩子使用喂食管的片段引发关注。BBC、People等媒体跟进报道，涉及SMA对婴幼儿行动与生活能力的影响、家长在就医与确诊过程中的等待与压力，以及公众对罕见病认知和支持需求。另有残障倡导者批评节目讨论时用词不当，呼吁以更尊重的语言呈现相关议题。
正文
Jesy Nelson spoke about SMA this week - I've lived with it for years BBC Jesy Nelson Shares Clip of Daughter with Feeding Tube After Revealing Diagnosis People.com Our children waited too long for same diagnosis as Jesy Nelson's twins BBC Disability advocate Sophie Morgan criticises Cat Deeley for her 'inappropriate' choice of words when discussing Jesy Nelson's twins following their SMA diagnosis Daily Mail Former Little Mix singer Jesy Nelson says her twin babies may never walk The Guardian
发布时间：